Thursday, June 17, 2010

End-of-life guide a risk, MPs told

Jim Derksen
The following story appeared in the Winnipeg Free Press today. Rhonda Wiebe and Jim Derksen made a presentation in Ottawa to the Parliamentary Committee on Palliative and Compassionate Care yesterday. The focus of the presentation was the direction Canada needs to go to ensure dignity and equality for people with disabilities in relation to medical treatment and end-of-life care.

Wiebe and Derksen focused on the Manitoba College of Physicians and Surgeons policy that gives the physician the right to determine the level of medical treatment or when treatment will be withheld. This policy has significant ramifications for people with disabilities.

The article stated:
End-of-life guide a risk, MPs told

By Jen Skerritt - June 17, 2010

Giving Manitoba doctors the power to pull the plug on a patient discriminates against disabled people who may fall short of the minimum standards to remain on life-support, local advocates told a Parliamentary committee Wednesday.

Jim Derksen and Rhonda Wiebe, Winnipeg members of the Council of Canadians with Disabilities, said certain policies -- including Manitoba's end-of-life guidelines -- put disabled patients at risk of improper treatment because of common attitudes that "it's better to be dead than disabled." They spoke out in front of a federal palliative and compassionate care committee in Ottawa, and voiced their concerns about legalizing assisted suicide and other inequities in end-of-life care.

Manitoba's medical regulatory body is the first in Canada to introduce guidelines for physicians to follow when dealing with end-of-life issues. They say the minimum goal of life-sustaining treatment is for patients to recover to a level in which they can be aware of themselves, their environment and their existence.

In the event families and physicians don't agree life-support should be withdrawn, doctors have the final say.

Derksen said some patients with cognitive impairment or conditions such as dementia may not be able to articulate that awareness, forcing doctors to make a judgment call. He said there is no objective test or brain scan performed to determine whether a person meets the minimum standard to remain on life-support.

"In other words, if there's too much disability, the patient (does not) meet the minimum goal," Derksen said. "That, to me, is pretty wrong and probably unconstitutional."

His concerns over Manitoba's College of Physicians and Surgeons end-of-life guidelines come just shy of the second anniversary of Samuel Golubchuk's death. The 85-year-old man died in Grace Hospital on June 24, 2008, at the centre of a controversial debate over who should decide when a person is pulled off life-support. Golubchuk's eight-month battle to remain alive pitted a patient's right to continue treatment against Winnipeg physicians who argued continuing to care for the elderly man was "tantamount to torture." They said Golubchuk had no self-awareness and that their decision to terminate support is in no way biased against disabled persons.

The court injunction Golubchuk's children sought to keep him alive died with him, and the question of who gets to decide when someone dies hasn't been fully answered.

Winnipeg Regional Health Authority officials conducted a review of Golubchuk's case to shed light on how to better handle conflict between patients and physicians, but the report is still in draft stages.

A spokesman from the Manitoba College of Physicians and Surgeons was unavailable for comment Wednesday.

Wiebe said she's concerned some medical professionals could be swayed by a common stereotype that living with a disability is "miserable." She said there should be more supports in place within the medical system to ensure disabled patients aren't treated differently. Wiebe said she wants the public to know a disabled person's quality of life is as good as anyone else's.

"We see that as a human rights violation because if you are a person with a cognitive disability you may not meet that standard," Wiebe said. "It shouldn't be a medical decision."
Link to the article in the Winnipeg Free Press:

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