Showing posts with label HHS. Show all posts
Showing posts with label HHS. Show all posts

Thursday, August 6, 2026

RFK Jr. Decertifies Kentucky Organ Procurement Organization

This article was published by National Review online on August 5, 2026.

Wesley Smith
By Wesley J. Smith

Say what you will about Health and Human Services Secretary Robert F. Kennedy Jr., but he definitely cares about ensuring that organ transplant medicine remains ethical, and unlike many government functionaries, he and his department are actually doing something about it. Thus, on the back of Medicare decertifying a Florida organ procurement organization for cause in 2025, the government is now decertifying the Network for Hope that operates in Kentucky and a few other states.

The government warned the network last year that its procurement procedures were ethically deficient. But the organ procurement organization never cleaned up its act despite knowing it was being scrutinized, including, apparently, for seeking to procure organs from people who had not died.

The unethical cases involve a procedure sometimes known as heart death (as opposed to brain death). In a heart-death donation, the donor is usually receiving intensive care. That medical support is withdrawn with consent and if cardiac arrest occurs — sometimes it doesn’t and the patient is then to be returned to care — after three or so minutes the patient is declared-dead because cardiopulmonary function has irreversibly stopped. After that, the procurement commences.

The case that caused the government to intervene is a real horror story as described by the New York Times:
In Kentucky, scrutiny began when a congressional committee heard testimony about the case of Anthony Thomas Hoover II, who had an overdose in 2021. After family members were told that he would not recover, they authorized donation.

As coordinators arranged for the surgery, Mr. Hoover began to stir, at one point “thrashing on the bed,” according to records reviewed by The Times. Still, Network for Hope, then called Kentucky Organ Donor Affiliates, tried to move forward. Finally, on the way to the operation, Mr. Hoover cried, pulled his knees to his head and shook his head, and a hospital doctor refused to withdraw life support.
Mr. Hoover eventually recovered, although he has lingering neurological injuries.

Good grief.

Despite that case, Network for Hope avoided punishment. But then:
A federal investigation last year determined that the group had similarly ignored signs of growing alertness in more than 70 other patients. Although the organ removals were eventually cancelled, the investigation said multiple patients exhibited pain or distress as they were being readied for surgery. Overall, more than 100 cases had “concerning features,” the investigators said, noting that the majority of transplants arranged by the Kentucky group were from circulatory-death patients.
Good for Kennedy and the government for moving on this. This is important. The people’s trust in organ transplant medicine is already shallow as unwise efforts to loosen ethical standards advocated by prominent bioethicists — such as allowing living people to be harvested — threaten to further erode public confidence. If we want to maximize the number of organs donated, people have to believe that their lives are deemed more important than their organs.

Next, the government should prohibit the use of a relatively new organ procurement procedure called “normothermic regional perfusion,” which allows cardiac arrest, cuts off circulation to the brain to induce brain death, and then restarts the heart before procurement. It seems to me — and I am far from alone in thinking this — that if someone is resuscitated successfully, he or she is not dead. Moreover, making patients brain-dead on purpose seems little different to me than actively killing them.

Tuesday, July 28, 2026

Health and Human Services (HHS) Office for Civil Rights statement on the ADA and assisted suicide.

Alex Schadenberg
Executive Director, Euthanasia Prevention Coalition

The following message was released by the HHS Office for Civil Rights (OCR) on July 27, 2026.
As we mark the ADA's 36th anniversary, HHS Office for Civil Rights (OCR) reaffirms a fundamental principle of the Americans with Disabilities Act (ADA): people with disabilities have the same inherent dignity and equal worth as every other person.

The ADA and Section 504 of the Rehabilitation Act prohibit discrimination based on disability in many settings, including healthcare. Healthcare decisions must not be influenced by stereotypes, bias, or judgments that a person's life is less valuable because of disability. Steering an individual toward physician-assisted suicide because of disability or assumptions about that person's quality of life may constitute unlawful disability discrimination. The Affordable Care Act also prohibits the use of federal funds for physician-assisted suicide, euthanasia, or mercy killing and protects health care providers and entities that decline to participate in those practices.

HHS OCR is committed to enforcing these protections and ensuring that people with disabilities are treated with dignity and respect and receive equal treatment under federal law. If you believe you have experienced disability discrimination in healthcare, you can file a complaint at: hhs.gov/ocr/complaints…
The HHS OCR statement upholds the equality of every American while correctly acknowledging that assisted suicide can be based on discrimination.

The statement also reinforces the federal law prohibiting funding for assisted suicide, euthanasia or mercy killing and the importance of protecting health care providers right to decline to participate in assisted suicide.

The statement focused on three points. Some people with disabilities have felt pressured to assisted suicide. Research has uncovered the fact that the federal law prohibiting funding for assisted suicide is being circumvented. Several state assisted suicide laws, including New York, undermine the right of health care workers to refuse to participate in killing by assisted suicide.

Monday, January 12, 2026

US HHS Deputy Secretary critcizes Canada for it's organ donation after euthanasia program.

“We thought we’d seen all the possible horrors, you know, in America, and then Canada had this strange new horror that was really just shocking,”
Alex Schadenberg
Executive Director, Euthanasia Prevention Coalition

Gabrielle M. Etzel reported for the Washington Examiner on January 8, 2026 that US Deputy Health and Human Services Secretary Jim O’Neill stated in an exclusive interview that Canada’s permissive physician-assisted suicide program has crossed ethical boundaries by how it has increased deceased organ donation rates through MAiD.

Deputy Secretary Jim O'Neill
O'Neill also told the Washington Examiner
that he was disturbed to learn that Canada’s physician-assisted suicide program, operating under the label Medical Aid in Dying, has enabled it to become a world leader in organ transplant policy from deceased donors.
O'Neill stated that Health and Human Services are trying to:
"revive trust in the American Organ Procurement and Transplantation Network after multiple troubling reports of organs nearly being harvested from live patients in several states, including Kentucky and New Jersey."
The US Department of Health and Human Services (HHS) sent a media release on July 21, 2025 about a study on organ donation and organ transplants in Kentucky, southwest Ohio, and part of West Virginia.

The Health and Human Services study examined 351 organ donation approvals and determined that in 103 of the cases the dead donor rule may have been violated.

I published three articles on the organ donation scandal (Article 1) (Article 2) (Article 3).

Etzel reported that:
O’Neill said that Canada’s program was uniquely problematic compared to even the most egregious stories in the U.S.

“We thought we’d seen all the possible horrors, you know, in America, and then Canada had this strange new horror that was really just shocking,” said O’Neill.
Etzel commented on a Canadian Medical Association Journal paper in 2024 that outlined a “substantial increase in deceased donation” in Quebec during the first years of the MAID program.

The paper stated that from 2018 to 2022, the number of deceased donors who died by physician-assisted suicide increased from 4.9% in 2018 to 14% in 2022.

Etzel then reported that:
The Canadian Institute for Health Information reported that 62 Canadians donated their organs out of 16,499 MAiD deaths in 2024, accounting for only 7% of the less than 900 total deceased donors across Canada.

O’Neill said that he has not spoken with his Canadian counterpart about the matter, but the apparent link between assisted suicide and organ donation rates in Canada “is very unfortunate.”
The Euthanasia Prevention Coalition shares the concerns of Deputy Health and Human Services Secretary Jim O’Neill concerning the connection between killing by euthanasia (MAiD) and organ donation in Canada. We are convinced that some people have asked be killed so they can offer their organs as an "altuistic act."

Link to articles about concerns related to organ donation (Articles Link).

Monday, August 25, 2025

Ontario Bill 4: We oppose presumed consent for organ donation.

Alex Schadenberg
Executive Director, Euthanasia Prevention Coalition

Please sign and share our petition opposing Ontario Bill 4: Peter Kormos Memorial Act. (Petition Link).

Ontario NDP MLA France Gélinas introduced Bill 4 on April 16, 2025. Bill 4 has not yet been debated in the Ontario legislature. Bill 4 states:

The Gift of Life Act currently requires that consent be obtained before tissue can be removed from a human body and used for therapeutic purposes, medical education or scientific research. Under the proposed amendments, consent is no longer required except from parents or guardians on behalf of children under 16 years of age. A person may object to the removal and use of the tissue prior to the person’s death or a substitute may object on the person’s behalf after the death has occurred.
Bill 4 would change The Gift of Life Act (Ontario), which requires consent to obtain organs and tissues and replaces it with presumed consent. The Ontario government would consider you to be an organ donor unless you have stated otherwise.

Bill 4 also changes the Connecting Care Act 2019 for the planning, co-ordinating, undertaking, supporting and promoting of activities relating to the removal, donation and use of human tissue, including the co-ordinating and supporting of designated facilities in connection with the removal and use of human tissue for transplant.

Please sign and share the following petition (Petition Link).

To the Hon Sylvia Jones, Ontario Minister of Health

As a citizen of Ontario I oppose Bill 4, Peter Kormos Memorial Act (Saving Organs to Save Lives). This bill that would institute a system of presumed consent for organ donation in Ontario.

A study by the US Department of Health and Human Services examined 351 organ donation approvals and determined that 103 of the cases may have violated the dead donor rule.

The government does not own my organs. I consider organ donation as a voluntary gift of life that is made after I have died. 

The Euthanasia Prevention Coalition supports the Dead Donor rule, meaning, the person must be dead before organs can be removed from a person. The Euthanasia Prevention Coalition calls for a re-affirmation of the dead donor rule and rejects a presumed consent for organ donation.

On July 23 we published an article about The US Department of Health and Human Services (HHS) media release concerning the American organ transplant system. The HHS examined 351 organ donation approvals and determined that in 103 cases their were concerns that either ethics or the dead donor rule was violated.

In 2023, an effort to legitimize harvesting organs from living people was prevented when The Uniform Law Commission stopped an effort to revise the UDDA. The revision to the UDDA would have redefined death to permit organ removal when a person, is not yet dead but has an irreversible condition.

Wednesday, August 13, 2025

Newsweek article: Mass exodus from organ donation registries

Alex Schadenberg
Executive Director, 
Euthanasia Prevention Coalition

The US Department of Health and Human Services (HHS) sent out the following media release on July 21, 2025 concerning organ donation and the organ transplant system in America.

Health and Human Services examined 351 organ donation approvals and determined that in 103 of the cases the dead donor rule may have been violated. 

Organ donation is a difficult topic to write about since organ donation can save lives. I have written about issues related to organ donation for many years. It is a scandal that death is sometimes caused by organ removal rather than organs being retrieved from a dead donor.

Since then we have published three articles on the organ donation scandal (Article 1) (Article 2) (Article 3).

Joshua Rhett Miller reported for Newsweek on August 13 that the recent organ donation articles have led to an unprecedented mass exodus from organ donation registries. Miller wrote:

Thousands of Americans have removed themselves from organ donor registries following "irresponsible reporting" led by the New York Times, officials said.

The Association of Organ Procurement Organizations (AOPO), a trade group that represents 46 of the nation's 55 federally designated nonprofit entities that help facilitate donations, accused the newspaper of a "lack of balance and accuracy" in its recent coverage of the problems in the sprawling transplant system.

An AOPO letter stated that:

"These stories have directly led to the biggest increase in people removing themselves from donor registries ever recorded, putting patients waiting for transplants at greater risk,"

The AOPO letter claims both articles contained "serious factual inaccuracies."

Claims about factual inaccuracies don't negate the reality that the US Health and Human Services examined 351 organ donation approvals and found:

  • 73 patients with neurological signs incompatible with organ donation.
  • At least 28 patients may not have been deceased at the time organ procurement was initiated—raising serious ethical and legal questions.

There were also problems with poor neurologic assessments, lack of coordination with medical teams, questionable consent practices, and misclassification of causes of death, particularly in overdose cases.

In other words, the AOPO should have monitored organ donation programs to prevent the scandal that has occurred. People support the dead donor rule. People are willing to donate their organs once they have died, but they do not want to die by donating their organs.

Last year the Euthanasia Prevention Coalition published an excellent article by lawyer, Sara Buscher titled: Let's not get rid of the Dead Donor Rule.

If the Dead Donor Rule is ignored or removed it results in people losing trust in the system and withdrawing their names from organ donation registries.

Wednesday, July 23, 2025

HHS Found Systemic Disregard for Organ Donation Dead Donor rule.

Alex Schadenberg
Executive Director, Euthanasia Prevention Coalition

Previous article: Organ Procurement Organization lapses threaten trust in transplant medicine (Link).

The US Department of Health and Human Services (HHS) sent out the following media release on July 21, 2025 concerning organ donation and the organ transplant system in the United States.

I have been writing about issues related to organ donation for many years based on the fact that organ donors are not always dead before organs are retrieved. Death is sometimes caused by organ removal rather than organs being removed from a dead person.

In 2023, an effort to legitimize harvesting organs from living people was prevented when the Uniform Law Commission stopped the effort to revise the UDDA. The revision to the UDDA was designed to give legal cover when organs are taken from people who have not yet died but have an irreversible condition.

The Euthanasia Prevention Coalition supports the dead donor rule.

Health and Human Services examined 351 organ donation approvals and determined that in 103 of the cases the dead donor rule was likely violated.

Link to the Health and Human Services media release (Link).

HHS Finds Systemic Disregard for Sanctity of Life in Organ Transplant System

Secretary Kennedy Threatens Closure of Deficient Organ Procurement Organization

WASHINGTON—July 21, 2025— The U.S. Department of Health and Human Services (HHS) under the leadership of Secretary Robert F. Kennedy, Jr. today announced a major initiative to begin reforming the organ transplant system following an investigation by its Health Resources and Services Administration (HRSA) that revealed disturbing practices by a major organ procurement organization.

“Our findings show that hospitals allowed the organ procurement process to begin when patients showed signs of life, and this is horrifying,” Secretary Kennedy said. “The organ procurement organizations that coordinate access to transplants will be held accountable. The entire system must be fixed to ensure that every potential donor’s life is treated with the sanctity it deserves.”

HRSA directed the Organ Procurement and Transplantation Network (OPTN) to reopen a disturbing case involving potentially preventable harm to a neurologically injured patient by the federally-funded organ procurement organization (OPO) serving Kentucky, southwest Ohio, and part of West Virginia. Under the Biden administration, the OPTN’s Membership and Professional Standards Committee closed the same case without action.

Under Secretary Kennedy’s leadership, HRSA demanded a thorough, independent review of the OPO’s conduct and the treatment of vulnerable patients under its care. HRSA’s independent investigation revealed clear negligence after the previous OPTN Board of Directors claimed to find no major concerns in their internal review.

HRSA examined 351 cases where organ donation was authorized, but ultimately not completed. It found:

  • 103 cases (29.3%) showed concerning features, including 73 patients with neurological signs incompatible with organ donation.
  • At least 28 patients may not have been deceased at the time organ procurement was initiated—raising serious ethical and legal questions.
  • Evidence pointed to poor neurologic assessments, lack of coordination with medical teams, questionable consent practices, and misclassification of causes of death, particularly in overdose cases.

Vulnerabilities were highest in smaller and rural hospitals, indicating systemic gaps in oversight and accountability. In response to these findings, HRSA has mandated strict corrective actions for the OPO, and system-level changes to safeguard potential organ donors nationally. The OPO must conduct a full root cause analysis of its failure to follow internal protocols—including noncompliance with the five-minute observation rule after the patient’s death—and develop clear, enforceable policies to define donor eligibility criteria. Additionally, it must adopt a formal procedure allowing any staff member to halt a donation process if patient safety concerns arise.

Secretary Kennedy will decertify the OPO if it fails to comply with these corrective action requirements [PDF].

HRSA also took action to make sure that patients across the country will be safer when donating organs by directing the OPTN to improve safeguards and monitoring at the national level. Under HRSA’s directive, data about any safety-related stoppages of organ donation called for by families, hospitals, or OPO staff must be reported to regulators, and the OPTN must update policies to strengthen organ procurement safety and provide accurate, complete information about the donation process to families and hospitals.

These findings from HHS confirm what the Trump administration has long warned: entrenched bureaucracies, outdated systems, and reckless disregard for human life have failed to protect our most vulnerable citizens. Under Secretary Kennedy’s leadership, HHS is restoring integrity and transparency to organ procurement and transplant policy by putting patients’ lives first. These reforms are essential to restoring trust, ensuring informed consent, and protecting the rights and dignity of prospective donors and their families.

HHS recognizes House Committee on Energy and Commerce Chairman Brett Guthrie’s (KY-02) bipartisan work to improve the organ transplant system and looks forward to working with him and other issue-area champions in Congress to deliver reforms.

More articles about this topic:

  • Euthanasia turning suicidal people into 'Kill and Harvest' natural resource (Link). 
  • Let's not get rid of the Dead Donor rule (Link).
  • No to Killing for Organs (Link).
  • Canada leads the world in organ donation after euthanasia (Link).