Executive Director, Euthanasia Prevention Coalition
The recent reports of nursing home abuse and the horrific number of COVID-19 nursing home deaths, and other nursing home deaths, should make not only think about improving nursing home care but to rethink nursing homes.
A Canadian military report recently uncovered disturbing conditions in Ontario nursing homes from unsanitary conditions to an alleged choking death that was caused by improper feeding practices.
The response that we are hearing is that we need to improve nursing homes. I agree that existing nursing home care is often substandard, but the answer to the problem is to move to a system of home care.
Canada appears to be committed to providing institutional care for our elderly citizens even though the system of institutional care is broken, expensive and does not provide the care that people want or need.
Fiona Whittington-Walsh in her article published in Rabble.ca examines the problem by comparing the experience with COVID-19 in Denmark to Canada. She writes:
Whittington-Walsh explains the benefits of home care with stories of people with disabilities. Paul Caune, a disability advocate who was born with muscular dystrophy was at one point in his life forced to live in the George Pearson Centre in Vancouver. Whittington-Walsh writes:
I believe in the philosophy of the community living movement and I recognize that the needs of people with disabilities can be very similar to the needs of the elderly.
Fiona Whittington-Walsh in her article published in Rabble.ca examines the problem by comparing the experience with COVID-19 in Denmark to Canada. She writes:
Denmark has a home-based care policy priority for seniors, and has transformed its senior care delivery model into a community-based model -- and has not invested in new congregate facilities since 1987. Reducing the number of nursing homes was matched with a steady increase in the number of home nurses. The decline in long-term congregative facilities for seniors in Denmark is evident in the fact that as of April 24, 2020 only 33 per cent of confirmed COVID-19 deaths were connected to these facilities, while in Canada, 62 per cent of all confirmed COVID-19 deaths are connected to such facilities.Whittington-Walsh then refers to an Ontario study suggesting that home care provides better care and is also economically a better option.
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| Paul Caune |
Caune's experiences at Pearson were traumatic. For two years he lived in an environment of fear and abuse. He and the other residents lost their autonomy, lacked basic rights, were forced to abide by curfews, were confined to their beds on scheduled bowel movement days, were only allowed one transfer in or out of bed per day, and were forced to take anti-psychotic drugs to keep them placid. It is the institutional model that is the problem, and Caune's experiences are consistent with the current and historical examples discussed in the first article.
Caune's battle to ensure home care for people with disabilities is also relevant for people living in nursing homes.
The report of the Parliamentary Committee on Palliative and Compassionate Care that was published in November 2011 is a fundamental guide to moving healthcare systems forward.
In its recommendation XV on page 52, concerning Palliative and End-of-Life care the report states:
The report of the Parliamentary Committee on Palliative and Compassionate Care that was published in November 2011 is a fundamental guide to moving healthcare systems forward.
In its recommendation XV on page 52, concerning Palliative and End-of-Life care the report states:
Home care is foundational to transforming Canada’s health care system. In reality it is a paradigm shift in our vision of health care. Allowing patients to stay at home has pronounced benefits for everyone involved, not least of which, the person being cared for in their own home and community. This is important as our nation seeks ways to improve the care of the elderly and vulnerable.
...A continuing care system can relieve burdens on the acute care system, in a way that doesn’t harm quality of care and perhaps even enhances it. This is not to deny the importance of surgical, diagnostic and specialist interventions, clearly the domain of the hospital. We now know that the majority of care that can be delivered to a person with chronic conditions in an institution can be delivered just as well at home. Home, family and community are too fundamental to the identity of the person, to be ignored in the basic care of the chronically ill or dying person.
The recent military report on nursing home abuse in Ontario confirms the truth of what the community living movement believes, that it is essential for all human beings to have equality and inclusion in society. Institutionalizing people with disabilities or the elderly leads to exclusion and discrimination and eventual abandonment.
I believe in the philosophy of the community living movement and I recognize that the needs of people with disabilities can be very similar to the needs of the elderly.
Canada needs to stop building institutional care that requires people to fit into a model of care that does not provide them with the options that they want and does so in a restrictive and expensive manner.
Canada needs models of compassionate community care. A model that cares for people in their home and community that doesn't segregate people and provides them with the respect and dignity that they deserve.

























