Friday, October 22, 2021

EPC Free Webinar on November 4 - Preventing Assisted Suicide across America.

Register for the Euthanasia Prevention Coalition 1 hour webinar on November 4, 2021 at 2 pm (Eastern Time) (12 Noon Mountain Time).

Alex Schadenberg, Executive Director of the Euthanasia Prevention Coalition (EPC) and Sara Buscher, lawyer and Chair of EPC-USA will focus on: Preventing Assisted Suicide across America.

Here is the link to register for the free webinar (Registration link).

Webinar topics will include:
  • In which states is assisted suicide legal? 
  • Where are assisted suicide bills being debated? (Bill to legalize or expand assisted suicide, with an analysis of the assisted suicide expansion bills). 
  • How do the assisted suicide laws work?
  • An analysis of the California court case to permit euthanasia.
  • Some data from Oregon and Washington State.
  • Information of the lethal drug cocktail experiments in America.
  • How do we prevent the legalization of assisted suicide? 
  • Learning from the Canadian experience.

We plan to leave ample time for questions.

The link to register for the free webinar (Registration link).

After registering, a confirmation email will automatically be sent with information for joining the meeting. If it appears that you didn't receive the email, check your spam or junk folder.

 

Large number of Peers speak in opposition to UK assisted suicide bill

Date: Friday 22nd October 2021

Release time: Immediate

Very large number of Peers speak in opposition to Lords assisted suicide bill

In line with convention, the Assisted Dying Bill had its Second Reading in the House of Lords today after over 7 hours and speeches from over 60 Peers opposing the Bill. It is the normal custom for Bills to move to Committee Stage without a division at this stage. It by no means implies the support of the House of Lords.

Given the Bill does not have Government support, it is very unlikely to be given the time in Parliament to be debated in the House of Commons and have any chance of becoming law.

The very large number of Peers who spoke against the Bill signifies that assisted suicide and euthanasia are strongly opposed by a large proportion of the House. The content and the quality of their speeches also demonstrated beyond any doubt that this Bill is unsafe and should not pass into law.

It is clear that many within Parliament robustly oppose this Bill.

Baroness Finlay
Baroness Finlay of Llandaff, officer of the All Party Parliamentary Group for Dying Well and a Professor of Palliative Medicine, said:

“Peers have today demonstrated a powerful opposition to this bill. Many vulnerable people are unaware of the dangers in going down this road, as this bill has hidden dangers, unsafe qualifying criteria, and potentially opens the door to even wider legislation.

“Instead, the focus should be on pressing the Government to do more to ensure good palliative and end-of-life care for everyone, everywhere in this country.”
Baroness Campbell
Baroness Campbell of Surbiton, Founder of Not Dead Yet UK and long-term campaigner on disability equality and human rights, said:
“Passing this law would be a dark day in our nation’s history. It would run counter to our duty to protect those in the most vulnerable situations, and would exacerbate their fears, through insidious pressure, of being regarded as an expendable burden. As has happened elsewhere, the Bill would doubtless be extended.

“No major disability rights group in the UK supports legalising assisted suicide. What they support is immediate and sustained improvement in their care. Now is not the time to abandon them to the desperate temptation of an assisted suicide under the guise of compassion.”
Baroness Grey-Thompson
Baroness Grey-Thompson DBE, Crossbench Life Peer and one of Britain’s greatest Paralympic athletes, said:
“The legal, medical and social implications of the Bill for disabled people are enormous. They need to know that doctors are obliged to do all they can to help everyone to live a good life. The current law keeps unconscious discrimination and social bias towards disabled people in check.”
For additional quotes and interviews, please contact Simon Caldwell on 07730 526847;

Or Alistair Thompson from Care Not Killing on 07970 162225;

Or Ben Furner from Not Dead Yet on 07946 355795.

ENDS

Notes to Editors The All Party Parliamentary Group for Dying Well promotes access to excellent care at end of life and stands against the legalisation of doctor assisted suicide in the UK. For more information visit https://www.dyingwell.co.uk/about/

Thursday, October 21, 2021

We mourn the death of Nancy Elliott, an amazing woman and great leader.

Alex Schadenberg
Executive Director, Euthanasia Prevention Coalition

Nancy Elliott
The Euthanasia Prevention Coalition (EPC) is mourning the loss of Nancy Elliott, the immediate Past Chair of EPC - USA.

Nancy was a former three term New Hampshire State legislator who learned about the issue of assisted suicide while sitting as a member of the New Hampshire House Judiciary Committee when they debated an assisted suicide bill.

Nancy Elliott's obituary (Link).

Nancy soon became one of the nations leading experts on euthanasia and assisted suicide as a fierce advocate for the vulnerable, disabled, and elderly regarding euthanasia and assisted suicide.

Nancy served as a leader for more than a decade speaking, writing, and testifying across America and the world on behalf of the EPC-International and as the Chair of EPC-USA.

Nancy was instrumental in contacting key legislators, committee chairs and Governors to convince them to prevent the legalization of assisted suicide. 

Her legacy is in many lives that were saved.

Nancy was featured in the film - Fatal Flaws produced by the Euthanasia Prevention Coalition and Dunn Media. In the film, Nancy spoke about how her husband would have felt if doctors were pushing assisted suicide when he was sick.

For me, Nancy was also a close friend.

Nancy wrote many articles opposing assisted suicide but she was also quoted in many articles world-wide. Here is a list of some of Nancy's great articles:
  • Speech to the New Hampshire House Judiciary Committee (Link).
  • Letter to Massachusetts politicians to reject assisted suicide bill (Link).
  • Letter to the Maine Health and Human Services Committee (Link).
  • The assisted suicide bill was aimed at people like my husband (Link).
  • New Jersey Journal endorses Canadian style euthanasia law. (Link).
  • Reject New York assisted suicide bill (Link).
  • Mary kills people is a dangerous and irresponsible show that should be terminated (Link).

Wednesday, October 20, 2021

No License to Kill: 1,700 UK doctors and nurses voice opposition to legalising assisted suicide and say they will refuse to take part if legalised

Duty of Care is a group of doctors and nurses in the UK who oppose euthanasia and assisted suicide (Link to the Duty of Care website).

PRESS RELEASE FROM OUR DUTY OF CARE - UK
IMMEDIATE RELEASE

A group of 1,700 doctors and nurses have voiced their strong opposition to legalising assisted suicide and say they will refuse to kill their patients even if the law is changed. Their intervention comes ahead of next week’s second record reading of a private members bill in the House of Lords that would allow doctors to provide lethal drugs to terminally ill people wanting to end their lives.

In the letter to the Secretary of State for Health and Social Care, Sajid Javid, the doctors say:

“As healthcare professionals, we have a legal duty of care for the safety and wellbeing of our patients. We write with great concern regarding the introduction of a Bill to legalise assisted suicide.”
It goes on: “The shift from preserving life to taking life is enormous and should not be minimised.” It goes on to say: “The prohibition of killing is present in almost all civilised societies due to the immeasurable worth of every human life...”
“…It is impossible for any government to draft assisted suicide laws which include legal protection from future extension and expansion of those laws. Canada has clearly demonstrated that safeguards can be eroded in a matter of just five years. The prohibition of killing is the safeguard. The current law is the protection for the vulnerable. Any change would threaten society’s ability to safeguard vulnerable patients from abuse, it would undermine the trust the public places in physicians, and it would send a clear message to our frail, elderly and disabled patients about the value that society places on them as people.”
The doctors include: Prof Johann de Bono, Regius Professor of Cancer Research and Experimental Cancer Medicine, London, Dr Carol Davis, Consultant in Palliative Medicine, Southampton, Prof David Galloway, former President of the Royal College of Physicans and Surgeons of Glasgow, Professor Rob George, Professor of Palliative Medicine, London, Dr James Haslam, Consultant in Intensive Care, Salisbury, Professor Julian Hughes, (Retired) Consultant in Old Age Psychiatry, Bristol. Professor Chris Parker, Professor of Oncology, London, Professor Alan Thomas, Professor of Old Age Psychiatry, Newcastle.

Dr Gillian Wright, a former palliative medicine registrar who now works in medical ethics and is a spokesperson for the healthcare group Our Duty of Care (Odoc) which organised the letter, commented: “Regrettably the public are being misled about the significant problems associated with Oregon’s assisted suicide legislation and its operation. For example, in 2020, over half of those ending their lives cited the fear of being a burden on their families as a reason and a further 7.4 per cent cited financial worries.

The letter concludes: “…It is impossible for any government to draft assisted suicide laws which include legal protection from future extension and expansion of those laws. Canada has clearly demonstrated that safeguards can be eroded in a matter of just five years. The prohibition of killing is the safeguard. The current law is the protection for the vulnerable. Any change would threaten society’s ability to safeguard vulnerable patients from abuse, it would undermine the trust the public places in physicians, and it would send a clear message to our frail, elderly and disabled patients about the value that society places on them as people.

“Far from one person’s decision affecting no one else, it affects us all. Some patients may never consider assisted suicide unless it is suggested to them. The cruel irony of this path is that legislation introduced with the good intention of enhancing patient choice will diminish the choices of the most vulnerable.

More than 1 in 60 deaths in Belgium occurred with no consent from the patient – those in coma, confused, or the elderly are euthanised because their lives are considered not ‘worth living’.

“We would not take patients’ lives – even if they asked us to – but for the sake of us all, and for future generations, we ask that the law remains unchanged.”

Dr David Randall, a medical registrar from London stated: “This letter emphasises just how much opposition there is within medicine to the legalisation of assisted suicide. The current law works well, protecting the vulnerable and allowing us to deliver to patients the kind of compassionate, individualised care to which we aspire. A change in the law would distort conversations and priorities around end-of-life care, and would threaten the world-leading hospices and palliative care services that we enjoy in this country. We call on politicians to keep the current law in place, and not to send to vulnerable patients the message that society no longer values their lives.”

Dr Wright added: “The 1,700 doctors and health care professionals who have signed this letter urge the Health Secretary, Sajid Javid and all Parliamentarians to reject this legislation and instead concentrate on ensuring that regardless of where you live or what you earn, you can access the very best palliative care – a system that caters for both the physical and psychological needs of those with terminal or chronic conditions.”

ENDS

Notes to editors

For media inquiries please contact Alistair Thompson of Team Britannia PR on 07970 162225

For further information about Our Duty of Care please visit: https://ourdutyofcare.org.uk/

 

Tuesday, October 19, 2021

Deadline Looms to Save Hospice Society. Purchase your DHS membership.

This article was published by Convivium on October 15, 2021

By Peter Stockland

Although it’s only autumn, Angelina Ireland hopes and prays October 22 will be a very good Friday for the Delta Hospice Society.

The date is the cut-off for new members to join the Society and help turn the tide against pro-euthanasia and assisted suicide activists seeking to seize control of the suburban Vancouver DHS board and its $4 million in assets.

Become a member of the Delta Hospice Society. (Link).


Ireland wants to ensure the board has the numbers to protect those assets and put dollars toward developing a network of private hospices across Canada and the U.S. where Medical Assistance in Dying (MAiD) will not be allowed.

The DHS board president and her colleagues also want a resolution passed amending the Hospice Society’s constitution to prevent MAiD ever being permitted in a private DHS facility. The resolution and the re-election of the current board will take place at a virtual annual general meeting later this year. Its date will be set once membership closes next Friday.

“The important date right now is October 22,” Ireland told Convivium in an interview. “Anybody who wants to become a member has to do so by (next Friday). By joining, people will have the opportunity to re-elect a pro-life board of directors and vote ‘no’ to euthanasia becoming part of the society.”
Ireland said DHS has already won a substantial victory just by maintaining the right to open the membership to all who want to join and by having the AGM held virtually so its accessible across North America. It took a heated, three-hour meeting on October 1 for the current DHS board to prevail over its pro-MAiD rivals. Ironically, it was able to do so by turning the tables using legal decisions that actually went against the Society in 2020.

Rulings from two B.C. courts, in cases initiated by MAiD supporters, denied the Society the power to limit its membership. The Supreme Court of Canada then refused to hear an appeal of those decisions.

The recent meeting, Ireland said, paradoxically focused on pro-MAiD activists themselves seeking to limit membership at the upcoming AGM given that DHS had taken the rulings as read and used them to mobilize about 7,000 new members throughout Canada and the U.S.
“All of a sudden, this was just a local issue. When they took us to court so that we couldn’t turn away their euthanasia activist members, it wasn’t a local issue. When they organized a national membership drive advertised across Canada, it wasn’t a local issue. But when that (membership drive) wasn’t as successful as they anticipated, now it became just a local issue,” Ireland said.
She estimates the DHS board has attracted about 4,000 members more than its MAiD opponents but neither she nor her colleagues are taking anything for granted: “We know our opponents are very smart and very motivated. They’re on a membership drive now, too. They want to overthrow the board to take over the Society. We have to rely on a grassroots effort from people who understand this is a showdown between a pro-life board of directors and people who want to elect a pro-death board.”

Ireland insists, though, that the real objective goes far beyond the bitter infighting of the last few years that have seen the DHS board forced out of the 10-bed Irene Thomas Hospice and forced to give up its palliative care support centre, both of which were built through millions of dollars in fundraising. The goal, she says, is to sink down roots for a private-sector, non-faith-based palliative care network that offers “sanctuary” against State-mandated provision of MAiD.

“We’ve already built a hospice and we intend to build another hospice. But we also want to help other communities build hospices that are euthanasia-free and free from government control and intervention. They (the local health authority) stole 10 of our hospice beds because we refused to kill our patients. We want to help to create hospice beds (throughout Canada and the U.S.) where euthanasia will not be performed.”

Become a member of the Delta Hospice Society. (Link).

Monday, October 18, 2021

New South Wales euthanasia bill temporarily stopped.

Alex Schadenberg
Executive Director, Euthanasia Prevention Coalition

This article was also published by Mercatornet on October 19, 2021.

NSW Premier Dominic Perrottet

The Australian state of New South Wales has just dodged a euthanasia bullet. It is the only state in the country where euthanasia is illegal. An independent MP, Alex Greenwich, last week tabled a bill in the lower house to change that.

Euthanasia lobbyists have run a thoroughly professional campaign. A petition has been signed by 100,000 supporters. The bill is backed by a record 28 MPs, including members of the government, crossbench and the Labor opposition – which is said to be the highest number of co-sponsors to a bill in the history of any Australian parliament and many doctors have signed a letter of support.

But today the euthanasia juggernaut suddenly ran bang! over a speed bump. And stopped. (Link to news article).

The government and the opposition have agreed to send it to the upper house for an inquiry. Its law and justice committee must report back to the parliament on the first sitting day in February. The bill will then be debated in the upper house.

This by no means guarantees the failure of the bill. But the aura of inevitability has evaporated. The delay will give an opportunity for both sides of the debate to present their best arguments and evidence.

According to an article published by the Conversation on October 12, Premier Dominic Perrottet, Deputy premier Paul Toole and Labor leader Chris Minns, all oppose the legalization of euthanasia and assisted suicide (assisted dying) in New South Wales.

Perhaps this is the moment to recall an article written by then-Treasurer Dominic Perrottet, in November 2017, published in the Sydney Morning Herald opposing the legalization of assisted suicide. You will notice that the Sydney Morning Herald peppered Perrottet's article with links to pro-assisted suicide stories, nonetheless, Perrottet's article in November 2017 remains insightful in 2021.

Perrottet begins by commenting on how suicide news stories always include links to Australian suicide prevention organizations, such as:

call Lifeline 131 114 or beyondblue 1300 224 636 or visit lifeline.org.au or beyondblue.org.au
He then states:
It's a dark, stark dissonance, and a confronting illustration of former prime minister Paul Keating's observation that, if we make assisted suicide legal, "there will be people whose lives we honour and those we believe are better off dead"...

It's got me wondering: if NSW or Victoria did cross that threshold, would news organisations continue to include the same potentially life-saving referral to suicide-prevention services in their reports? Or will that footnote need to be updated, with one message for those whose deaths the publishers wish to avert, and another for the people whose deaths they are happy to facilitate?

And what about the suicide prevention hotlines themselves? Will they screen out people whose wish to die sounds rational, and who may qualify under the relevant legislation, distinguishing them from the thousands of callers desperately seeking help to avoid the tragedy of suicide? Will those hotlines be asked to refer people who can legally end their own lives to places where they can get more information on how to go about it? Will the hotlines acquiesce in such requests?

Perrottet then brough up the issue of medical mistakes:

And what about mistakes? Our legal system prizes its cornerstone principle of "innocent until proven guilty". The great jurist Lord Blackstone said, "Better that 10 guilty persons go free than that one innocent party suffer". And yet, despite this, innocent people go to jail. Lawyers, juries, judges, police and witnesses all make mistakes, because the fact is, no human system of safeguards is infallible.

So with assisted suicide laws. Doctors will make mistakes. Victims will be pressured. Judgments will be clouded, and among all the arbitrary rules and safeguards, only one thing is absolutely certain: innocent people will die at the hands of these laws if they pass. At least the falsely imprisoned can be exonerated and freed years after the fact. For the innocent victims of assisted suicide laws there can be no long-awaited justice, just the silence of the grave.

This is the dark, dangerous void of confusion and contradiction that we are steering our society into if we back these bills.
He concluded his article by calling on legislators to oppose assisted suicide and support excellent end-of-life care.
We need to help those among us suffering through their darkest hour, not push them deeper into the ultimate darkness.

We need more and better palliative care – something we have significantly boosted in this year's NSW state budget, and something that as Treasurer I will continue to push as a matter of priority.

We must not create a two-tier society of the worst possible kind: where there are those whose lives we desperately work to preserve, and those to whom we really will be saying, "You are better off dead". I will be voting against the NSW legislation, and I call on all people of goodwill here in NSW and in Victoria to consider these issues and make their voices heard.
New South Wales is the only Australian state to not have legalised assisted suicide. I hope they resist the "easy answer for people who want to avoid suffering" and defeat the assisted suicide bill.

The complexity of addressing mental health and capacity

Note: This article is written by Liz Sayce. The British House of Lords will be debating the assisted dying bill on October 22, sponsored by Baroness Meacher.

The Meacher Bill - The complexity of addressing mental capacity and mental ill-health

The Bill and its safeguards

Liz Sayce
The Bill states clearly that before assistance to die could occur the High Court (Family Division) would need to be satisfied that a person seeking assistance to die has the mental capacity to make that decision.

The attending doctor and independent doctor involved would need to be similarly satisfied of the person’s mental capacity. If they have doubt, they must refer the person for assessment to a specialist (any registered psychiatrist[1]) and take account of any opinion given.

The Bill also states that the Secretary of State may issue Codes of Practice on issues including assessment of mental capacity; and taking account of depression and other psychological disorders that may impair a person’s decision-making (2 distinct topics, in one or more Codes).

On the face of it these sound like sensible safeguards; but they raise significant questions, some practical, some much more fundamental.

The fundamental challenge of providing safeguards linked to depression and other mental health challenges in the context of assessing capacity

The interaction between mental health challenges (‘psychological disorders’) and mental capacity is complex. Wesseley’s recent review of the Mental Health Act[2] attempted to address its complex relationship with the Mental Capacity Act but there remain unresolved issues.

Assessing capacity in someone with both terminal illness and depression is not straightforward. Depression is common amongst people who are terminally ill: indeed a diagnosis of terminal illness is the kind of major loss that can trigger depression. A desire for suicide is a major symptom of depression, but it may also be a well-thought-through response to impending death. Weir argues that it is very hard to distinguish between the two[3]. The person may be motivated by a combination of the two, in which case, how does the assessor decide whether the person’s desire to die is coloured more by depression or more by their rational response to terminal illness? And how do assessors across the country do so consistently?

In addition, depression tends to fluctuate, which presents both challenges in assessing what is truly the person’s ‘settled will’ - and opportunities to support people through their times of despair: with treatment and support, the wish to die can be ameliorated even if the prognosis is short[4]. Price et al (2014)[5] summarise the research evidence as follows:

Depression is common in palliative care[6] and desire for hastened death is strongly associated with depression in palliative populations[7]. In Oregon it has been shown that depression is not always appropriately identified in patients requesting assisted suicide[8]. There is evidence to suggest that treatment of depression can reduce the wish for hastened death[9]

Even if the wish to die is coloured by depression, it is perfectly possible that she or he would still be assessed as having the capacity (depending on the definition used – see discussion below). Many people experiencing depression or other mental health challenges meet the ‘capacity’ criteria of the Mental Capacity Act: they are quite able to understand information, weigh up options and communicate a decision on life issues large and small.

It is not straightforward to remove autonomy just because someone has depression; indeed it could be a case of disability discrimination if someone with depression, with capacity, were denied a ‘treatment’ option just because of their impairment (depression). If, as seems likely, large numbers of people with mental health challenges would be considered to have the capacity, then the apparent safeguard for people with depression rather melts away.

It is also not clear that the attending independent doctors would always refer effectively for a capacity assessment. The Royal College of Psychiatrists pointed out that many doctors do not know how to assess for the presence of depression in people who are terminally ill[10].

The (potential) Code topic of ‘taking account of depression and other psychological disorders that may impair a person’s decision-making may sound like a safeguard that is additional to the (separately listed) safeguard of assuring that the person has mental capacity. However, the legal question (as laid out in this Bill) is simply whether the person has the capacity to make this major decision. Therefore the ‘depression’ safeguard appears to be a subset of the ‘capacity’ safeguard - in effect a reminder to think about the impact of psychological disorders (alongside learning disability, dementia or other potential sources of incapacity) when assessing mental capacity to decide.

This would face mental health services and voluntary sector partners with a challenge. Should they sustain their long-standing commitment to prevent suicide amongst people experiencing mental health problems wherever possible, driven by a national policy agenda that has set targets for suicide reduction and ensured that every local area has an all-age multi-agency suicide prevention plan in place? [11] Should multiple agencies always start by reaching out to people who are seeking to die, listening, valuing them, supporting them to want to live? Or should they accept that for the sub-set of people with mental health problems who also have a terminal illness, the one question is whether they have the capacity to decide and have made a decision – in which case, would they ditch the whole approach to suicide prevention in favour of autonomy?

This dilemma brings into sharp focus some of the well-known contradictions between Mental Health and Mental Capacity Law. Under Mental Health law, someone who DOES have the capacity to make decisions can nonetheless be detained and treated against their will if they have a mental disorder and certain risk criteria are met. It seems possible that under this Bill someone could be given psychiatric treatment against their will – ie denied autonomy – but nonetheless have the right to assistance to die as long as they met the definition of mental capacity.

Much depends on how mental capacity is defined and assessed. Price et al[12] note that where the ‘bar’ is set – on a continuum from a basic cognitive capability through to a full understanding of context and implications – has not been settled in jurisdictions with assisted dying legislation. Different clinicians set the bar at different points, influenced by factors including their own values. In a survey of US forensic psychiatrists, those with ethical objections to assisted suicide recommended higher thresholds for competence and a more extensive review of the decision [13]. The Mental Capacity Act requires that clinicians first assume capacity and have to demonstrate a LACK of capacity to act in someone’s best interests. The Mental Capacity Act does not provide a clear framework for deciding whether someone DOES have the capacity to make the major life and death decision of assisted suicide.

The Bill does not begin to address these dilemmas. It may gently imply that taking account of depression will offer safeguards, but these would risk being paternalistic if they applied to people with capacity (however defined). As drafted they may turn out to be a chimaera.

In addition, there may be a question about whether some mental health problems ARE terminal illnesses. Someone with advanced anorexia, for instance, maybe very reasonably expected to die within 6 months. Treatment options may have been exhausted. She or he might or might not have the mental capacity to decide – but if they did, is there any reason they should not be assisted to die? The same could potentially apply to someone with severe depression who has not responded to treatment and makes repeated suicide attempts. In a climate of commitment to ‘parity of esteem between mental and physical ill-health, a non-discriminatory case could be made for accepting some people with mental health problems (and no other terminal illness) for assisted dying.

Finally, the Bill suggests another potential Code topic, on the information on treatment, support and end of life care that would be made available to the person. There is no requirement for actual availability of mental health support or end of life care – just a potential requirement to inform people of what does exist. This is a weak safeguard for people with mental health challenges in a context in which there are huge gaps and delays in getting mental health support: the Mental Health Foundation, for instance, estimates that 85% of over-50s with depression receive no help at all from the NHS[14]. There are also of course no guarantees in the Bill of support with social isolation, financial challenges or inappropriate housing. These social determinants make mental health challenges (including suicidal depression) more likely in the first place; and once people have mental health problems, such social problems tend to intensify, in a vicious cycle[15]. Surveys by the CQC of the experience of people receiving community mental health support consistently find that over 40% report that they would have liked support with finance, benefits and employment but did not get them[16]. It would be quite possible for people to develop depression in the context of major social problems, subsequently, become terminally ill, get no support with their isolation and poverty and opt to die while the opportunity to intervene with multi-faceted support went unaddressed.

Specific points

On mental capacity assessments, the attendant and independent doctors must seek an opinion from a registered psychiatrist if there is any doubt about the person’s capacity. It is not clear, though, that every registered psychiatrist has the necessary assessment skills: many psychiatrists are much more familiar with assessing criteria for detention or treatment under the Mental Health Act (which do not include the mental capacity to make decisions) than criteria under the Mental Capacity Act. This increases the risk of inconsistent assessments of capacity. Assessing capacity amongst people with learning disabilities and autistic people has been found, in the Netherlands, to be inconsistent between clinicians and to be influenced by views of disabled people’s lives[17].

Secondly, we know that existing Codes of Practice are not implemented with sufficient effectiveness in relation to people with mental health challenges: the CQC’s 2019 evaluation of compliance with the Code under the Mental Health Act 1983 notes ‘particular areas of concern where we found that the guiding principles were not being routinely implemented to inform practice in the way they should. This was true in fundamental areas such as using the least restrictive approach and involving patients in their own care[18]. ‘Through our review, we have not found evidence that the Code has prompted a substantial change in the way services are empowering and involving people in their care. These are deep-rooted problems of culture and practice and we cannot assume that provision of one or more Codes on assisted dying would be sufficient to ensure that real engagement would take place with people with mental health challenges at a time when they were facing major decisions about their life and death. Similarly, the post-legislative review of the Mental Capacity Act found that the Act was not being implemented in the way intended and that the duties imposed by the Act were not widely followed.[19]

Conclusion

Parliament should think very carefully about these complexities rather than being reassured by potential Codes and safeguards that seem to melt away as they are examined. Ambiguities and complexities leave doors open to subsequent legal interpretation, challenge and legislative amendment that could expand the remit of this Bill and erode the apparent (but often flimsy) safeguards. There is a tension between the equality of disabled people and safeguards that has not been grappled with in this Bill. If there is an assumption that the presence of depression or other mental health challenges means someone should be denied autonomy, that flies in the face of the Mental Capacity Act and the equality of disabled people. If that is not the assumption, then the safeguards are very narrowly delimited, the Bill seems to drive a coach and horses through the mental health policy objective of suicide prevention and there may be risks of following countries like Belgium in making assisted dying increasingly available to people with mental health problems, and the Netherlands, where people with a learning disability and autistic people are being offered euthanasia by doctors who are unable to make consistent, competent capacity assessments[20].

People living with mental health challenges, learning disabilities, dementia and other cognitive impairments should be at the heart of a deeper discussion about assisted dying than has informed this Bill to date.

Liz Sayce. October 2021

This note is written in a personal capacity and does not reflect the views of any organization. 

Liz Sayce chaired the Commission for Equality in Mental Health, hosted by the Centre for Mental Health, 2019-21. She is a Visiting Senior Fellow at the London School of Economics and was Chief Executive of Disability Rights UK (and its legacy charity Radar) from 2007-2017, where she led work for equal participation for all, through programmes on independent living, career opportunities and shifts in cultural attitudes and behaviour. Liz is a Trustee of ADD (Action on Disability and Development), Vice-Chair of the Social Security Advisory Committee and a member of the Disability Advisory Committee of the Equality and Human Rights Commission. She has been a Non-Executive Director of the Care Quality Commission and a member of the Healthwatch England Committee. With a background in mental health and disability policy, previous roles include Director of Policy and Communications at the Disability Rights Commission and Policy Director of Mind. She led an Independent Review into disability employment programmes for Government in 2011 and has published widely on mental health, disability and social participation. She undertook a Harkness Fellowship in the USA resulting in a book (From Psychiatric Patient to Citizen, 2000 – updated in 2016).

 

[1] A doctor ‘registered in the specialty of psychiatry in the Special Register kept by the General Medical Council’ according to the Bill

[2] https://www.gov.uk/government/...

[3] https://www.apa.org/monitor/20...

[4] Royal College of Psychiatrists Presidents’ Blog: Assisted suicide for the terminally ill 26/7/2014

[5] Price et al.: Concepts of mental capacity for patients requesting assisted suicide: a qualitative analysis of expert evidence presented to the Commission on Assisted Dying. BMC Medical Ethics 2014 15:32. doi:10.1186/1472-6939-15-32

[6] Rayner L, Lee W, Price A, Monroe B, Sykes N, Hansford P, Higginson IJ, Hotopf M: The clinical epidemiology of depression in palliative care and the predictive value of somatic symptoms: cross-sectional survey with four-week follow-up. Palliat Med 2011, 25(3):229–241

[7] Price A, Lee W, Goodwin L, Rayner L, Humphreys R, Hansford P, Sykes N, Monroe B, Higginson IJ, Hotopf M: Prevalence, course and associations of desire for hastened death in a UK palliative population: a cross-sectional study. BMJ Support Palliat Care 2011, 1:140–148

[8] Ganzini L, Goy ER, Dobscha SK: Prevalence of depression and anxiety in patients requesting physicians' aid in dying: cross sectional survey. BMJ 2008, 337:a1682

[9] Breitbart W, Rosenfeld B, Pessin H, Kaim M, Funesti-Esch J, Galietta M, Nelson CJ, Brescia R: Depression, hopelessness, and desire for hastened death in terminally ill patients with cancer. JAMA 2000, 284(22):2907–2911

[10] ODOC BMA Briefing.pdf

[11] https://assets.publishing.serv...

[12] Op cit

[13] Ganzini L, Leong GB, Fenn DS, Silva JA, Weinstock R: Evaluation of competence to consent to assisted suicide: views of forensic psychiatrists. Am J Psychiatry 2000, 157(4):595–600

[14] https://www.mentalhealth.org.u...

[15] Sayce L (2016) From Psychiatric Patient to Citizen Revisited. Palgrave

[16] https://www.cqc.org.uk/publica...

[17] Tuffrey-Wijne I, Curfs L, Finlay I, Hollins S (2018) Euthanasia and assisted suicide for people with an intellectual disability and/or autism spectrum disorder: an examination of nine relevant euthanasia cases in the Netherlands (2012-2016). BMC Medical Ethics 19:17; and Tuffrey-Wijne I, Curfs L, Finlay I, Hollins S. (2019) “Because of his intellectual disability, he couldn’t cope.” Is euthanasia the answer? Journal of Policy and Practice in Intellectual Disabilities 16 (2), 113-116

[18] https://www.cqc.org.uk/sites/d...

[19] House of Lords - Mental Capacity Act 2005: post-legislative scrutiny - Select Committee on the Mental Capacity Act 2005 (parliament.uk)

[20] Tuffrey-Wijne e al op cit