Showing posts with label Alicia Duncan. Show all posts
Showing posts with label Alicia Duncan. Show all posts

Friday, August 7, 2026

Alicia Duncan's Book Launch in Abbotsford and Vancouver BC - August 20/21.

Join Alex Schadenberg and attend the book launch for the powerful - The Other Side of the Straightjacket, by Alicia Duncan.

EPC is promoting the Book Launch Celebrations on: August 20 in Abbotsford and August 21 in Vancouver.

August 20, 2026 - The book launch is at: The Reach Gallery Museum
32388 Veterans Way, Abbotsford BC V2T 0B3 from 6:30 - 9:00 pm (Link to register).

August 21, 2026 - Author presentation and book signing is at Suite Genius
225 W 8th Ave Vancouver BC V5Y 1N3 from 6:30 - 8:00 pm (Link to register).
 
Purchase the book from the Euthanasia Prevention Coalition for $25 (plus shipping) (Purchase Link).

In 2021, Alicia’s mother, Donna Duncan, died by Medical Assistance in Dying (MAiD), a death that sparked national controversy and led to the first police investigation into a MAiD death in Canada. What began as a daughter’s search for answers became years of advocacy, legal action, and a mission to expose troubling gaps in the systems mean't to protect vulnerable people.


Donna’s story has been featured by major media outlets, including the BBC documentary Better Off Dead? and CBC’s The Fifth Estate. Alicia has since become a recognized voice in the national and international conversation around assisted dying, most recently providing testimony to Canada’s Special Joint Committee on Medical Assistance in Dying (AMAD).

More than anything, these events are about the story behind the book: why Alicia felt compelled to write it, what she learned in the process, and why these conversations matter now more than ever.

Sunday, July 5, 2026

How narrative control is narrowing Canada’s MAiD debate

This article was published by Alicia Duncan on July 2, 2026.

Alicia Duncan
The Cost of Certainty

By Alicia Duncan & Kelsi Sheren

Canada’s Medical Assistance in Dying (MAiD) regime was built on a promise that has become central to public trust: that those seeking an assisted death may do so within a framework of careful safeguards designed to protect the vulnerable while respecting autonomy.

I came to this issue not through ideology, but through experience. In October 2021, my mother died by MAiD in British Columbia after a rapid decline marked by severe weight loss, chronic pain, psychiatric deterioration, disordered eating, and profound hopelessness. My family believed these circumstances raised serious questions about vulnerability, capacity, and whether her desire to die reflected enduring autonomy or the distortions of untreated mental suffering.

The questions we asked in the aftermath changed the course of my life. What began as a daughter’s attempt to understand how this could happen evolved into years of investigation involving Freedom of Information requests, regulatory complaints, and what became Canada’s first police investigation into a MAiD death. That work eventually led me to testify before parliamentary committees on two separate occasions and to discussions with policymakers in the United Kingdom and Scotland. It also became the foundation for my forthcoming book, The Other Side of the Straitjacket: A Daughter’s Story of Mental Illness and Assisted Dying.

What has struck me most over these years is not simply the polarization surrounding MAiD, but the increasingly narrow boundaries of acceptable discourse around it.

Every ethically serious medical practice should be able to tolerate scrutiny, especially one involving the intentional ending of human life. Yet in Canada’s MAiD debate, criticism is often treated less as a contribution to oversight than as a threat to the legitimacy of the system itself. Questions about safeguards are reframed as attacks on autonomy. Concerns about psychiatric vulnerability are dismissed as ideological opposition. Scientific uncertainty is presented to the public with a confidence that the underlying evidence does not always justify.

One of the clearest examples of this is the debate over the physiological effects of MAiD medications. Public discussion of this issue gained momentum following the work of Dr. Joel Zivot, an American anesthesiologist and expert in lethal injection pharmacology, who raised concerns during testimony before the Canadian Senate in 2021 as Canada was considering the expansion of its MAiD regime to include individuals whose natural death was not reasonably foreseeable. Zivot questioned whether the drug protocols used in assisted dying may, in some cases, lead to rapid fluid accumulation in the lungs—a condition known as pulmonary edema, which impairs oxygen exchange and, in severe cases, may produce a dying process he described as more akin to drowning.

His testimony raised an important question: how much do we actually know about the physiological effects of MAiD medications during the dying process?

Recently, I came across a Substack article from a MAiD advocacy platform criticizing military veteran and MAiD critic Kelsi Sheren for raising concerns about pulmonary edema during assisted dying. In dismissing those concerns, the authors wrote: “Perhaps the most common and harmful example is her claim that the MAiD medications cause fluid to build up in the lungs and cause the person to drown—which is completely untrue.”

I found that statement deeply troubling—not simply because I disagree with it, but because I possess evidence that directly challenges it.

Through Freedom of Information records, I obtained documentation of the precise medications and dosages administered to end my mother’s life. The protocol was neither unusual nor experimental. It matched the standard intravenous drug regimen recommended by the Canadian Association of MAiD Assessors and Providers (CAMAP).

I also possess something extraordinarily rare in a MAiD case: an autopsy.

Because MAiD deaths are generally classified as expected deaths with a known cause, autopsies are seldom performed. As a result, post-mortem evidence examining the physiological effects of MAiD medications in real-world settings remains remarkably limited.

My mother’s autopsy documented pulmonary edema.

Whatever conclusions one draws from a single case, it leaves little room for absolutism.

I am not suggesting this proves pulmonary edema occurs in every MAiD death, nor that every patient experiences conscious respiratory distress. It does, however, establish an important point: pulmonary edema can occur after the administration of standard MAiD medications.

That makes the assertion that such concerns are “completely untrue” difficult to defend.

A more intellectually honest position would be to acknowledge that we do not yet know how often pulmonary edema occurs during MAiD, under what circumstances it develops, or what clinical significance it may carry, largely because the research simply has not been done.

I have attempted to engage directly with the authors of this Substack on this issue. I approached them in good faith, outlining the evidence in my possession and raising what I believe are legitimate questions about the physiological effects of MAiD and the troubling lack of meaningful clinical research in this area.

What I encountered was not curiosity, but defensiveness. And that, in many ways, captures the deeper problem.

Increasingly, I see advocacy groups, institutions, and stakeholders responding to questions about MAiD not by openly examining potential flaws in the system, but by protecting the system from scrutiny. The impulse is not to ask what might be missing from our understanding, but how confidence in the existing narrative can be preserved.

This is a pattern I know intimately. My family experienced it repeatedly after my mother’s death. Over time, I came to recognize this pattern as a form of institutional gaslighting. Not overt manipulation, but something subtler: selective framing, strategic omission, and unwavering certainty in areas where meaningful uncertainty remains.

The effect is profound. People begin to question what they witnessed, what they know, and whether their observations are legitimate—not because the evidence disproved them, but because the dominant narrative leaves no room for competing truths.

That principle matters profoundly in medicine, where progress has never depended on the defence of existing assumptions, but on the willingness to question them. Medicine advances because clinicians and researchers remain open to anomalies, willing to investigate uncomfortable evidence, and humble enough to acknowledge the limits of current knowledge. Ethical systems should demand no less of themselves.

That is why the growing defensiveness surrounding MAiD concerns me. Any system empowered to intentionally end life carries an extraordinary burden of accountability. Public trust in such a system cannot rest on polished messaging or categorical reassurance; it must be earned through transparency, rigorous scrutiny, and a genuine willingness to examine where safeguards may fail.

What concerns me most is not disagreement, nor even criticism. It is the gradual normalization of a culture in which difficult questions are treated as threats rather than as necessary components of ethical oversight. Once that happens, the goal subtly shifts. The priority is no longer understanding what is true, but preserving confidence in what is already believed.

That is a dangerous place for medicine—or for any institution entrusted with irreversible decisions—to operate.

Tuesday, May 26, 2026

Show the powerful film in your community: Life Worth Living

Alex Schadenberg
Executive Director, 
Euthanasia Prevention Coalition

Purchase or rent the
 Life Worth Living film from the Euthansia Prevention Coalition at: https://lifeworthlivingfilm.com

Change hearts and minds by screening the powerful Life Worth Living film in your community.

Below is the trailer for the Life Worth Living film:

Reviews we received of the film:
I just watched Life Worth Living and I have to say I'm so incredibly impressed. I can't contain my enthusiasm for this film. It's one of the best film projects on the subject of medical killing ever. I'd expect awards to be forthcoming for best documentary film. Lester.
Another review:
I have purchased the film "Life Worth Living" a couple of weeks ago and have watched it. I feel that it's a film that everyone should watch because it shows what is happening in the system of "health" care in Canada and it opens our eyes to the reality of how far our government and the medical system has gone in the direction of killing people instead of healing people.

I would like to ask permission to show this film for our parish community
. Eva
The Euthanasia Prevention Coalition granted Eva permission to have the film shown in her community. Please arrange screenings of the film.

Life Worth Living features:
  • Alicia Duncan, whose mother died by euthanasia with conditions based on mental health, 
  • Kelsi Sheren, a Canadian military veteran who came back from combat with PTSD and other disabilities. Kelsi is a social media influencer and a life coach.
  • Roger Foley, a Canadian man living with a significant disability who has been pressured by hospital staff to request euthanasia.
  • Dr David D'Souza, an Ontario pain specialist.
  • Dr Catherine Ferrier, a Quebec Gerontologist and a leader of Physicians' Alliance against Euthanasia, 
  • Dr Will Johnston, a Vancouver family physician and leader of Euthanasia Resistance BC
  • Kathy Matusiak Costa, Executive Director of Compassionate Community Care,
  • Alex Schadenberg, (myself), author, keynote speaker, International leader opposing euthanasia and assisted suicide.
The Euthanasia Prevention Coalition needs your help.
  1. Purchase the Life Worth Living Film (Life Worth Living film Link)
  2. Arrange to have Life Worth Living shown in your community. Contact us at: info@epcc.ca
  3. You may want a speaker at the event to lead a discussion. Contact us at: info@epcc.ca

Wednesday, May 20, 2026

Should the Euthanasia Prevention Coalition apologize to Helen Long from Dying with Dignity?

Alex Schadenberg
Executive Director, Euthanasia Prevention Coalition

On May 5, I had the opportunity to present to the Special Joint Committee on Medical Assistance in Dying (AMAD). The AMAD committee is examining whether Canada was "ready" to begin euthanasia (MAiD) for mental illness alone, which is currently scheduled to begin on March 17, 2027.

My presentation time was shared with Helen Long, the CEO of Dying with Dignity, Canada's leading euthanasia lobby group and Alicia Duncan, the daughter of Donna Duncan, who died by euthanasia after experiencing a head injury from a car accident.

My presentation focused on Canada needing to conduct a complete review of it's euthanasia law which was required in the original legislation but has never been done. All of the reviews of Canada's euthanasia law were limited to examining further expansions of the law.

On May 4, the day before the AMAD committee hearing, Dying With Dignity filed an emergency relief in an Ontario court, urging the court to legislate from the bench and order the killing of Claire Elyse Brosseau who is living with mental illness as her sole underlying condition. The Dying with Dignity press release, explains that Brosseau, Dying With Dignity and Dr Patricia Smith filed the case.

During the question and answer session at the AMAD committee Helen Long claimed to represent the people who were demanding euthanasia for the sole underlying condition of mental illness. She then read a letter from Claire Brosseau whereby Brosseau complains that the AMAD committee did not bring witnesses from people who are seeking euthanasia, based on mental illness alone.

In concluding the Brosseau's letter, Long read: 
We so often hear the expression ‘Nothing About Us Without Us’ and yet they have refused to hear from any people who are harmed from the exclusion…
Amy Hasbrouck
Amy Hasbrouck, the director of Toujours Vivant - Not Dead Yet and a past-President of the Euthanasia Prevention Coalition responded to the use of the axiom "Nothing about us without us" with an article that essentially tells the euthanasia lobby to: Get our words out of your mouth.

Hasbrouck challenges Long and the euthanasia lobby based on the fact that people with disabilities experience the ultimate discrimination through euthanasia laws, that being death. Hasbrouck explains the long-standing opposition to euthanasia and assisted suicide by the disability community and completes her article by stating:
When people’s livelihood and self-image depends on not understanding something, they probably won’t understand it. Apparently, Ms. Long’s personal, pecuniary and political interests depend on her not knowing that it is very uncool to appropriate a disability rights principle in advocating a position the disability rights movement strongly opposes.
Since then the Euthanasia Prevention Coalition and Amy Hasbrouck have been lobbied by euthanasia lobbyists, Claire Brosseau and her family to apologize to Helen Long.

John Brosseau sent the Euthanasia Prevention Coalition and Amy Hasbrouck this message:
I find myself compelled to respond to the words you published about Helen Long. 

Helen Long has sustained my daughter through circumstances of profound and unrelenting difficulty. She has offered her support with a constancy and grace that few possess. There is no ambiguity about her character or her commitment to Claire. You were cognizant of the fact that Helen spoke on my daughter’s behalf. You possessed this knowledge. You chose to publish your critique nonetheless, directing it at a woman whose sole purpose has been to advocate for my daughter’s dignity and her right to self-determination.
Claire Brosseau sent us a message, urging us to apologize to Helen Long.

So what did Amy Hasbrouck write that requires an apology? 

Hasbrouck, who practised law in Massachusetts, stated that she is a survivor of childhood trauma, she has lived with mental illness and she has been a long-time disability rights activist. Among other things, Hasbrouck wrote:
If she (Helen Long) knew the first thing about ableism, Ms. Long would know that MAiD discriminates against disabled people by definition; disability is among the eligibility criteria enumerated in the definition of a grievous and irremediable medical condition. She would also know that MAiD was provided to many non-terminal disabled people even before the 2019 Truchon decision and the 2021 adoption of Bill C-7, which created “track 2” eligibility for people whose deaths were not “reasonably foreseeable.” Even if Ms. Long didn’t have the advantage of the lived experience of disability discrimination to guide her in evaluating Bill C-14, and its early implementation, anyone who claimed the solidarity of “nothing about us, without us” should have noticed what’s happened in the ten years since legalization; the failure to improve access to palliative care, the reports of same-day euthanasia and MAiD requests linked to “external pressure” (poverty, inadequate and inaccessible housing, and treatment denials) the 100,000 euthanasia deaths and the transformation of an “exceptional” measure to an “expected” response.
Hasbrouck was angry about the use of the disability axiom, "Nothing about us without us" to promote euthanasia, especially since euthanasia was legalized in Canada without considering the concerns of the disability community. Considering her experience and Canada's reality I consider Hasbrouck's anger to be in it's proper place.

As for Brosseau, she is being used by the euthanasia lobby for the purpose of expanding euthanasia to people with mental illness. If she wants to be used by the euthanasia lobby, then that's her decision, but if she is granted death by the court, based on mental illness as the sole criteria, many more people will also be killed based on that precedent. Killing results in many more people being killed.

I oppose killing people and I support the best possible care being provided. But death is never a solution even when it becomes the final solution.

But if I am wrong and if the Euthanasia Prevention Coalition should apologize to Helen Long for publishing Amy's article, then let the readers tell us. Otherwise I will continue to support Amy Hasbrouck and the disability community.

Wednesday, May 6, 2026

My experience speaking to the Parliamentary Committee on Euthanasia.

Alex Schadenberg
Executive Director, Euthanasia Prevention Coalition

I was approved to speak to Canada's Joint Committee on Medical Assistance in Dying (euthanasia) on May 5, 2026. Previous sessions of the Joint Committee on euthanasia, which also dealt with expansions of euthanasia, denied me the opportunity to present to the committee.

I was given 5 minutes to present to the committee (link to my speech).

Based on my experience watching the previous hearings that examined euthanasia for mental illness, euthanasia for children and euthanasia by advanced request, I felt that the response from the Members of Parliament had changed. The majority of the joint committee continued to support euthanasia but they had become more cautious and were having second thoughts about expanding the law to include killing people who have a mental illness as their sole condition.
Alicia Duncan, the daughter of Donna Duncan, who died by euthanasia in 2022, also presented at the same hearing. Alicia provided an excellent testimony about why it was wrong to kill her mother, but also how the family was prevented, by the authorities, from receiving the "medical" reports that approved her mother's euthanasia death.

Alicia was questioned by two Senators who attempted to undermine her testimony. It is obvious that pro-euthanasia committee members are uncomfortable with the truth related to Donna Duncan's death and wanted to undermine her testimony rather than question the law that enabled a doctor to kill her mother.

My testimony focused on the need to fully review Canada's euthanasia law. I stated that:
...Parliament needs to completely review the euthanasia law.

More broadly, Canada’s assisted dying law is vague. While Health Canada provides guidance, the legal framework allows for wide interpretation and it lacks effective oversight.

Because of time constraints, I will highlight one key issue.

Sections 241 (3) and 241 (3.1) of Canada's Criminal Code states that medical practitioners or nurse practitioners are required only to be “of the opinion” that the eligibility criteria are met. That, in practice, makes accountability extremely difficult, even impossible to prosecute a medical or nurse practitioner in Canada, even when the MAiD death is clearly wrong or deeply disturbing.

Canada should not be considering the expansion of the euthanasia law to people with mental illnesses alone but rather Parliament needs to fully review the law.
I was asked several questions.

Senator Yonah Martin acknowledged that there has never been a review of Canada's euthanasia law. Previous committee's examined further expansions of the law, but not whether the law is being abused, even if the abuse is based on the vague language of the law.

One Member of Parliament asked me about people who are dying from cancer.  I will paraphrase my response.

I said that this committee is examining euthanasia for mental illness which I believe is a different issue.

Under the law, a person with a physical condition that is not terminal or irremediable does not qualify for euthanasia. If the law is extended to persons with mental illness, psychiatrists have testified that it is impossible to determine if a person's mental illness is irremediable, but the law would still permit euthanasia.

Most psychiatrists will tell patients with mental illnesses who are requesting to be killed by euthanasia that it is impossible to determine if they have an irremediable condition therefore it is impossible to approve them for euthanasia.

But some psychiatrists will approve requests for euthanasia by stating that the person has an irremediable mental illness. These psychiatrists will become known for approving euthanasia for mental illness, leading to patients, who are doctor shopping, contacting them to be kileed by euthaansia.

This situation is not different than our current situation except that in this case the people seeking death will be living, solely with a mental illnes.

I was also asked about people who wanted to die by euthanasia for mental illness, and are happy to be alive today. I responded by sharing the stories of Kathryn D'hondt and Andrea (Link to stories).

I was sitting beside Helen Long, the CEO of Dying with Dignity. There were several Senators and Members of Parliament who clearly support Dying with Dignity, who glowingly asked questions to enable Long to provide a longer testimony.

Dying with Dignity is a very dangerous group since they support euthanasia for nearly every situation.

Long appeared very nervous. She spoke about the recent legal challenge whereby Dying with Dignity is supporting Claire Brosseau in her demand to be killed by euthanasia based on mental illness. 

Dying with Dignity must be nervous because they wouldn't launch an expensive court case if euthanasia for mental illness will be in place in March 2027.

Monday, March 16, 2026

Free online Life Worth Living film screening on March 30.

Register in advance to watch the free online screening of the powerful Life Worth Living film on Monday, March 30 at 7 pm (Eastern Time). 
(Registration Link)

The Life Worth Living film features stories from people who have been directly affected, doctors who explain their experiences, and people who are working to prevent euthanasia in Canada. 

Register in advance for this online event: (Zoom registration link). After registering you will receive a viewing link.

EPC has had multiple online screenings and many groups have sponsored screenings of the Life Worth Living film. We encourage groups and individuals to arrange a screening of the Life Worth Living film. Contact EPC at info@epcc.ca

Life Worth Living was a finalist at the Cannes World Film Festival and is being considered by multiple film festivals. 

Life Worth Living is 60 minutes long. After the completion of the broadcast we will have time for a discussion.

Life Worth Living features:
  • Alicia Duncan, whose mother died by euthanasia with conditions based on mental health, 
  • Kelsi Sheren, a Canadian military veteran. CEO, best selling Author of the book - Brass & Unity, TedX speaker and host of the Kelsi Sheren perspective.
    Roger Foley
  • Roger Foley, a Canadian man living with a significant disability who has been pressured by hospital staff to request euthanasia.
  • Dr David D'Souza, Ontario pain specialist.
  • Dr Catherine Ferrier, Quebec Gerontologist and a leader of the Physicians' Alliance against Euthanasia, 
  • Dr Will Johnston, family physician and leader of Euthanasia Resistance BC
  • Kathy Matusiak Costa, Executive Director of Compassionate Community Care,
  • Alex Schadenberg, (myself), author, keynote speaker, International leader opposing euthanasia and assisted suicide.
 
The Euthanasia Prevention Coalition needs your help:
  1. Arrange to have Life Worth Living shown in your community. Contact us at: info@epcc.ca
  2. You may want a speaker at the event to lead a discussion. Contact us at: info@epcc.ca
  3. You can purchase the Life Worth Living film at:  www.lifeworthlivingfilm.com or through Salem Now.

Tuesday, January 13, 2026

Register online or in-person for our EPC update meeting on Wednesday January 21.

Register online or in-person for the Euthanasia Prevention Coalition update and directions event.

Wednesday, January 21, 2026 from: 1 - 3 pm (Eastern Time) at the Ethics and Public Policy Center at: 1730 M Street NW Suite 910 Washington DC.

To attend in-person, email info@epcc.ca
To attend online register in advance: (Zoom registration Link)

Delaware, Illinois and New York legalized assisted suicide in 2025. Each state had an excellent team of people working to stop the assisted suicide bill. The assisted suicide lobby is emboldened, as no new state had previously legalized assisted suicide since New Mexico did in 2021.

A recent assisted suicide lobby strategy meeting stated that they plan to introduce assisted suicide legalization bills in 18 US states in 2026.

The Canadian government is scheduled to extend euthanasia to mental illness alone, starting in March, 2027. Canada's parliament is now debating Bill C-218 that would prevent euthanasia for mental illness. How must we respond?

Aleš Primc
The event features:

AleÅ¡ Primc, the organizer of the successful referendum in Slovenia that overturned the assisted suicide law. that was passed in the Slovenian parliament. The Slovenian referendum was successful against all projections. Primc will be in Washington DC to share his successful strategy.

Alexander Raikin
Alexander Raikin is a visiting fellow in Bioethics at the Ethics and Public Policy Center. Raikin has been published by multiple journals and news agencies. 

Raikin has become a key researcher on issues related to euthanasia and assisted suicide. Link to some of the articles by Alexander Raikin (Articles Link).

Alicia Duncan
Alicia Duncan, has become an incredible leader after first attempting to prevent her mother's death by euthanasia, and after becoming an advocate for others, families, friends to prevent euthanasia deaths. 

Alicia's book will soon be published and she was recently featured in the film Life Worth Living.
 
Wesley J Smith
Wesley J Smith is a long time lawyer, writer and bioethicist who has spoken throughout the world on issues related to euthanasia and assisted suicide. His book - Forced Exit, is one of the most important books opposing assisted suicide. Wesley is a regular contributor on National Review online

Alex Schadenberg
Alex Schadenberg is the Executive Director of the Euthanasia Prevention Coalition and world-wide commentator and speaker on issues related to euthanasia and assisted suicide since 1998. Alex overseas the world's leading blog on issues related to euthanasia and assisted suicide.

Attend in-person or online.
The event is Wednesday, January 21, 2026 from 1 - 3 pm (Eastern Time)

To attend in-person, email info@epcc.ca
To participate online (Registration Link).